News
Research – Emotion Perception in Youth with CAH
"Altered Emotion Perception Linked to Structural Brain Differences in Youth With Congenital Adrenal Hyperplasia" From Volume 25, Fall 2023 Cares Foundataion Newsletter "Conclusion: Findings suggest that youth with CAH perceive emotive stimuli as more unpleasant....
Annual General Meeting – 26th November, 10:30am UK time via MS Teams
The CAH Support Group is pleased to announce its 5th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 26th November 2023 at 10:30 am UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet...
Research findings – The PULSES trial
Ultradian hydrocortisone replacement alters neuronal processing, emotional ambiguity, affect and fatigue in adrenal insufficiency: The PULSES trial First published - 19 October 2023 "The PULSES study has shown that the pattern of cortisol presentation, even at an...
New page launched – Life with CAH
We're pleased to announce the launch of a new page - "Life with CAH". Here you can find all sorts of information and ideas about living with CAH - whether you have the condition yourself, or know or care for someone else who does. We've included three key sections -...
Education & Social event – Sunday 1st October 2023, Coventry UK
The CAH Support Group are running an educational/social day at Coventry University (UK) on Sunday 1st October 2023, which will run from 11am – 4pm. The meeting will primarily be of interest to parents of children with CAH, although everyone with an interest in CAH...
Participants wanted – Exploring support needs of young people with CAH
Researchers from the Centre for Appearance Research (CAR) at the University of the West of England (UWE), Bristol are working on a project to better understand the support needs of young people with a difference in sex development (dsd) and develop support based on...
CAH patient’s survey from CAH International
Last year, CAH International held a first joint kick-off, on the basis of which working groups for research, surgery and standard of care were also formed. The Standard of Care Working Group are mainly concerned with the issue of care at the moment. In order to learn...
Network Event – 24th June 2023 – Royal Hospital for Children &Young People (Edinburgh, EH16 4SA, UK)
The Scottish Paediatric Endocrine Group (SPEG) is holding a Network Family Event on Saturday 24th June 2023 at 11:00-15:00 at the Royal Hospital for Children and Young People (Edinburgh, EH16 4SA). This is a free event aimed at families with an interest in Adrenal...
Online Survey – Self-management for patients with Adrenal Insufficiency
Wording below credit to The Pituitary Foundation: This research study is looking for adults in the UK with adrenal insufficiency. Researchers are looking to understand the factors that affect how people with adrenal insufficiency manage their condition and treatments....
Smaller dose Hydrocortisone tablets now available
Credit to the Addison's Self-Help Group : "Following years of hard work with Professor Karim Meeran, Endocrinologist at Imperial College, London, Genesis Pharmaceuticals have launched new doses of Hydrocortisone instant release tablets, including lower strengths 2.5mg...
Annual General Meeting – 15th October, 2pm UK time via MS Teams
The CAH Support Group is pleased to announce its 4th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 15th October 2022 at 2pm UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet the...
Article: Health Status of Children & Young People With CAH In The UK
A recently published reseach paper "Health Status of Children and Young Persons with Congenital Adrenal Hyperplasia in the UK (CAH-UK): a cross-sectional multi-centre study" in the in European Journal of Endocrinology concludes that '(there is) an increased prevalence...