News

UPDATE - March 2022 120 MarathonMan has completed the challenge! 120 marathons in 120 days 30 months training Over £45,000 raised for various charities including Living with CAH. Vote for Graham (120 MarathonMan) as Yorkshire Fundraiser of the year 2022 here:...

We will be running an online meeting for adult women with CAH on Saturday 23rd April at 10:00-12:00 UK time.  Come along and meet others in a friendly, safe and supportive space. For more information and to register, please contact Kaz, our Adult Support Group...

Our very own Kaz Williams discusses living and ageing as a female adult with classical salt-wasting congenital adrenal hyperplasia (CAH). Read the full article in the Winter 2021 issue of 'The Endocrinologist'. Recent Blog Posts

The endocrine team at Liverpool University Hospital have released a short video to educate patients with adrenal insufficiency about management of their steroid replacement therapy. It includes a section about sick-day rules, as well as sections about how to...

A recently published article from Royal Manchester Children’s Hospital, the University of Manchester, and Manchester Royal Infirmary concludes that "during intercurrent illness episodes, parents reliably increased oral hydrocortisone doses but rarely administered...

Price gouging is where companies substantially raise prices above costs of production and investment, often due to a lack of competition. Generic drugs are non-brand, off-patent medicines. They benefit from a legal loophole, facing much less price regulation than...

A recent article titled "A review of menstrual sex education and management in women with congenital adrenal hyperplasia", concludes that "from a research perspective, championing the development of evidence-informed products that are accessible to the parents of...

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

A recently published small case series of patients with adrenal insufficiency (though none with CAH) who had incipient / actual adrenal crises following the coronavirus vaccine concludes that: "In individuals with adrenal insufficiency, adverse reactions to the...

WEBINAR: Accessing Mental Health Services Interconnected UK (Icon UK) is pleased to invite you to a webinar to learn more about mental health services in the public, private and third sectors in the UK. Some people with variations in sex characteristics have had good...

DSD Families are recruiting young adults aged 16-25 with experience of variations of sex development to help shape and develop some of their peer psychosocial support ideas. Since CAH falls under the variations of sex development umbrella, they would like to speak to...

The Society for Endocrinology has released a statement on COVID-19 vaccines for patients with endocrine conditions - which states: "We are not aware of any specific side effects of a COVID-19 vaccine that would be unique to people with endocrine conditions" and that...