Education & Social event – Sunday 1st October 2023, Coventry UK

Aug 25, 2023

The CAH Support Group are running an educational/social day at Coventry University (UK) on Sunday 1st October 2023, which will run from 11am – 4pm.

The meeting will primarily be of interest to parents of children with CAH, although everyone with an interest in CAH will of course be welcome to come along.  Unfortunately we are not able to organise a crèche on this occasion but children are welcome, although they will need to stay under the supervision of their parents.

We are delighted to announce that Professor Nils Krone, (Paediatric Endocrinologist from Sheffield Childrens Hospital) has very kindly agreed to join us and give a presentation and answer general questions.

We are also hoping that parents of children and adults with CAH will share their own experiences and advice. If you’d like to be considered for giving a short talk on the day, please contact Sue or Sallyann via our ‘Meet the Team’ page.  Hearing from others who understand what it is like to live with CAH is so reassuring and helpful (especially for new parents), so please consider this – you will be amongst friends who will appreciate and understand your views!

A sandwich lunch and refreshments will be provided.  Although the day will be mainly financed by the support group, we are asking for a nominal admittance fee of £5 per adult (children free) to  go towards the costs but have tried to keep this low so that we don’t exclude anyone who would like the opportunity to attend.

If you would like to attend contact Sallyann via our ‘Meet the Team’ page – the last date for booking is 22nd September.

 

—> Article image by FreePik <—

Recent Blog Posts

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

European Hormone Day – 24th April 2024 – Because Hormones Matter

European Hormone Day – 24th April 2024 – Because Hormones Matter

European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter. Many people have an idea of what hormones...

Genomics England – The Generation Study – CAH included

Genomics England – The Generation Study – CAH included

The Generation Study is being carried out by Genomics England in partnership with the NHS. It is exploring the possible use of genome sequencing in newborn babies to identify a wide range of rare genetic conditions alongside the routine newborn blood spot screening....

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

All content on this website (livingwithcah.com) is copyright the CAH Support Group unless otherwise stated.

The CAH Support Group cannot be held responsible for the content provided by any external links unless stated.

Cookie Policy | Privacy Policy | Disclaimer | Forum & Social Media Rules | Contact Us