Other Support Groups

CAH support doesn’t stop here. View a list of related groups around the world below.  

The CAH Support Group is based in the UK and its primary focus is on those in the UK who are living with CAH.

However, we know that there are may people around the world affected by CAH and similar conditions, and so have listed some related support groups below which you may find useful or more specific to your location – click on the group’s name to be taken to their homepage.


Addison’s Self-Help Group

The Addison’s Disease Self-Help Group (ADSHG) is the UK and Ireland charity working to improve the lives of people with Addison’s disease, adrenal insufficiency and all who support them. 

CAH Canada

The home of our Canadian counterparts.


A CAH support group based in the Czech Republic. (Skupina podpory CAH se sídlem v České republice.)

 CAH Support Group Australia

The Congenital Adrenal Hyperplasia Support Group Australia (CAHSGA) was formed in 1985. They work to improve knowledge and services for those affected by CAH. They are a small not for profit group run entirely by volunteers.


CARES Foundation

CARES Foundation is a nonprofit organization committed to improving the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH) in the USA.

Caring & Living as Neighbours (CLAN)

CLAN was founded in Australia by Dr Kate Armstrong after learning about the plight of children living in Vietnam with Congenital Adrenal Hyperplasia (CAH).  The group is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours’ children in wealthier countries.

DSD Families

dsdfamilies was set up as an on-line resource about DSD conditions by two parents – Ellie and Laurie – in 2011. The objective was to provide a reliable and practical source of advice from both peers and doctors, and to have the chance to exchange ideas which were open-minded and, at heart, optimistic.



The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

All content on this website (livingwithcah.com) is copyright the CAH Support Group unless otherwise stated.

The CAH Support Group cannot be held responsible for the content provided by any external links unless stated.

Cookie Policy | Privacy Policy | Disclaimer | Forum & Social Media Rules | Contact Us