Welcome to the CAH Support Group

We support people with CAH, their families and friends.

WHO WE AREDONATE

CORONAVIRUS INFORMATION

We are working to provide those who are living with CAH the most up-to-date information as possible.

Our news item here provides links and information from various sources.

Please keep checking back here for more information – we’ll add it as soon as we can. 

Congenital Adrenal Hyperplasia (CAH)

What is CAH?

CAH occurs approximately once in every 15,000 people worldwide. It is an inherited condition which prevents the adrenal glands functioning correctly. To stay healthy, people with CAH must take daily life-long medication to replace the hormones which their adrenal glands don’t make.

How we help

The CAH Support Group is run by people who, between them, have been living with CAH for over 100 years!

Providing support since 1991

The group was formed by our Chair, Sue, not long after her son was born with the condition.

Fundraising for research

We raise money to aid research and development into new and revised treatment methods and medication.

Answering your questions

We run regular events including conferences and regional meetings so members can meet others living with the condition. There’s always someone to talk to!

Network of medical advisors

Our group of medical advisors include consultant endocrinologists, nurses, surgeons and psychologists who specialise in treating all types of CAH.

About us

The CAH Support Group is a charity run by its members.

The support group was formed in 1991. Our aim is to give support to people with CAH and their families and friends, to increase awareness of the condition among the public and the medical profession, and to raise funds to support research.

Fundraising

CAH needs your help

Like many charities the CAH Support Group need to ask the public for money. We rely on public generosity – an enduring feature of our group, but one that can never be taken for granted.

You can read all the books and see all the doctors, but talking to someone who’s actually been there and understands how you feel is a huge reassurance.

Latest News

Updates from the CAH blog

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

Reprofutures Research Project – Material now available

Reprofutures Research Project – Material now available

Reprofutures is a co-created research project which took place from 2019-2022. Its objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility,...

CAH Support Group Conference – 12th June, Bristol

CAH Support Group Conference – 12th June, Bristol

SUNDAY 12 JUNE 2022 9.30 -16:30 FUTURE INNS HOTEL, BOND STREET, BRISTOL www.futureinns.co.uk/ Those living with CAH and their families and friends are invited to the biennial conference of CAH support group.
 Highlights of the event will include: Presentations from...