Welcome to the CAH Support Group
We support people with CAH, their families and friends.
Congenital Adrenal Hyperplasia (CAH)
What is CAH?
CAH occurs approximately once in every 15,000 people worldwide. It is an inherited condition which prevents the adrenal glands functioning correctly. To stay healthy, people with CAH must take daily life-long medication to replace the hormones which their adrenal glands don’t make.
How we help
The CAH Support Group is run by people who, between them, have been living with CAH for over 100 years!
Providing support since 1991
The group was formed by our Chair, Sue, not long after her son was born with the condition.
Fundraising for research
We raise money to aid research and development into new and revised treatment methods and medication.
Answering your questions
We run regular events including conferences and regional meetings so members can meet others living with the condition. There’s always someone to talk to!
Network of medical advisors
Our group of medical advisors include consultant endocrinologists, nurses, surgeons and psychologists who specialise in treating all types of CAH.
The CAH Support Group is a charity run by its members.
The support group was formed in 1991. Our aim is to give support to people with CAH and their families and friends, to increase awareness of the condition among the public and the medical profession, and to raise funds to support research.
Fundraising
CAH needs your help
Like many charities the CAH Support Group need to ask the public for money. We rely on public generosity – an enduring feature of our group, but one that can never be taken for granted.
You can read all the books and see all the doctors, but talking to someone who’s actually been there and understands how you feel is a huge reassurance.
Latest articles
See all articles here
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Education & Social event – Sunday 1st October 2023, Coventry UK
The CAH Support Group are running an educational/social day at Coventry University (UK) on Sunday 1st October 2023, which will run from 11am – 4pm. The meeting will primarily be of interest to parents of children with CAH, although everyone with an interest in CAH...
Participants wanted – Exploring support needs of young people with CAH
Researchers from the Centre for Appearance Research (CAR) at the University of the West of England (UWE), Bristol are working on a project to better understand the support needs of young people with a difference in sex development (dsd) and develop support based on...
CAH patient’s survey from CAH International
Last year, CAH International held a first joint kick-off, on the basis of which working groups for research, surgery and standard of care were also formed. The Standard of Care Working Group are mainly concerned with the issue of care at the moment. In order to learn...