Welcome to the CAH Support Group
We support people with CAH, their families and friends.
Congenital Adrenal Hyperplasia (CAH)
What is CAH?
CAH occurs approximately once in every 15,000 people worldwide. It is an inherited condition which prevents the adrenal glands functioning correctly. To stay healthy, people with CAH must take daily life-long medication to replace the hormones which their adrenal glands don’t make.
How we help
The CAH Support Group is run by people who, between them, have been living with CAH for over 100 years!
Providing support since 1991
The group was formed by our Chair, Sue, not long after her son was born with the condition.
Fundraising for research
We raise money to aid research and development into new and revised treatment methods and medication.
Answering your questions
We run regular events including conferences and regional meetings so members can meet others living with the condition. There’s always someone to talk to!
Network of medical advisors
Our group of medical advisors include consultant endocrinologists, nurses, surgeons and psychologists who specialise in treating all types of CAH.
The CAH Support Group is a charity run by its members.
The support group was formed in 1991. Our aim is to give support to people with CAH and their families and friends, to increase awareness of the condition among the public and the medical profession, and to raise funds to support research.
Fundraising
CAH needs your help
Like many charities the CAH Support Group need to ask the public for money. We rely on public generosity – an enduring feature of our group, but one that can never be taken for granted.
You can read all the books and see all the doctors, but talking to someone who’s actually been there and understands how you feel is a huge reassurance.
Latest News
Updates from the CAH blog
Family Meeting in Newry, Ireland – 9th February, 2-6pm
The annual Ireland family meeting will be held on Sunday, 9th February from 2pm - 6pm at Bessbrook Community Centre, Ireland. Places are limited so for more information and to book a place, please contact Jo & Mark - our area coordinators for Ireland - through the...
CAH treatment may be linked to lower bone mineral density
Higher glucocorticoid doses for adults with CAH may be associated with lower bone mineral density, especially among women and those prescribed prednisolone, according to findings published in Clinical Endocrinology. Read more on Healio. Recent Blog Posts
Coffee & Share Meeting with ‘Same But Different’ – 30th January, Mold
Same But Different are hosting a Coffee and Share meeting in Mold on 30th January, where anyone affected by rare disease can meet to chat and share their experiences over a cup of coffee and a slice of cake. Glow Beauty will be present too, and will treat guests to a...