What you should know about COVID-19 – updated 18th December
Guidance from other organizations is continually being issued and we’ll do our best to link to them below – please keep checking back here for more updates.
UPDATE 18th December 2020
The Society of Endocrinology has issued a statement about COVID-19 vaccines – read our news article here:
UPDATE 24th April 2020
The Lead Editors of the European Journal of Endocrinology (EJE) have commissioned a review series entitled ‘Endocrinology in the time of COVID-19’.
UPDATE 24th March 2020
Professor Stephanie Baldeweg, Consultant Endocrinologist, has shared a video on Twitter for all those with adrenal insufficiency. See the post here.
UPDATE 20th March 2020
Guidance from the Society for Endocrinology and Metabolic Support UK has been recently updated.
Metabolic Support UK – Guidance updated to reflect Paracetamol/Ibuprofen advice (Read more)…
UPDATE 18th March 2020
UPDATE 16th March 2020
Society for Endocrinology – Coronavirus advice statement for patients with adrenal/pituitary insufficiency
Metabolic Support UK – Coronavirus Advice
We have collected some guidance about the outbreak from the World Health Organizion below, as well as made some suggestions for people living with CAH.
What is COVID-19?
COVID-19 is an infectious disease caused by the most recently discovered coronavirus. This new virus and disease were unknown before the outbreak began in Wuhan, China, in December 2019.
How does COVID-19 spread?
People can catch COVID-19 from others who have the virus. The disease can spread from person to person through small droplets from the nose or mouth which are spread when a person with COVID-19 coughs or exhales. These droplets land on objects and surfaces around the person. Other people then catch COVID-19 by touching these objects or surfaces, then touching their eyes, nose or mouth. People can also catch COVID-19 if they breathe in droplets from a person with COVID-19 who coughs out or exhales droplets. This is why it is important to stay more than 1 meter (3 feet) away from a person who is sick.
What are the symptoms of COVID-19?
The most common symptoms of COVID-19 are fever, tiredness, and dry cough. Some patients may have aches and pains, nasal congestion, runny nose, sore throat or diarrhea. These symptoms are usually mild and begin gradually. Some people become infected but don’t develop any symptoms and don’t feel unwell. Most people (about 80%) recover from the disease without needing special treatment. Around 1 out of every 6 people who gets COVID-19 becomes seriously ill and develops difficulty breathing. Older people, and those with underlying medical problems like high blood pressure, heart problems or diabetes, are more likely to develop serious illness. People with fever, cough and difficulty breathing should seek medical attention.
Tips for people living with CAH
No specific advice has been issued for those with adrenal insufficiency or CAH. So, as well as following the advice for the general public from the WHO, we recommend the following:
- Remember ‘sick day rules’.
- Make sure you have enough medication on hand.
- Where possible, vaccinate against seasonal flu.
If any information specific to CAH does become available, we will publicise it as soon as we can.
Recent Blog Posts
The Society for Endocrinology has released a statement on COVID-19 vaccines for patients with endocrine conditions - which states: "We are not aware of any specific side effects of a COVID-19 vaccine that would be unique to people with endocrine conditions" and that...
The Support Group will be running a virtual Adult Meeting on Sunday 13th December at 11am (UK time). This is a great chance to meet other adults with CAH and have a friendly chat. If you would like to join us, please contact Kaz (her details are on the 'Meet the Team'...
Article: Recommendations of patients and families of girls with 46XX CAH in the UK regarding the timing of surgery
The article, published 23rd November 2020, concluded that 'expert families and patients in the UK who have had CAH surgery, recommend surgery in the first few years of life vs. adulthood' and that while there is a 'selection bias', this finding 'may support...