News
Family Meeting in Newry, Ireland – 9th February, 2-6pm
The annual Ireland family meeting will be held on Sunday, 9th February from 2pm - 6pm at Bessbrook Community Centre, Ireland. Places are limited so for more information and to book a place, please contact Jo & Mark - our area coordinators for Ireland - through the...
CAH treatment may be linked to lower bone mineral density
Higher glucocorticoid doses for adults with CAH may be associated with lower bone mineral density, especially among women and those prescribed prednisolone, according to findings published in Clinical Endocrinology. Read more on Healio. Recent Blog Posts
Coffee & Share Meeting with ‘Same But Different’ – 30th January, Mold
Same But Different are hosting a Coffee and Share meeting in Mold on 30th January, where anyone affected by rare disease can meet to chat and share their experiences over a cup of coffee and a slice of cake. Glow Beauty will be present too, and will treat guests to a...
Survey for women with CAH aged 25-64.
Are you a woman with a diagnosis of the condition congenital adrenal hyperplasia (CAH) aged between 25 and 64 years? We are endocrinology doctors at Newcastle University in the UK investigating whether some women with this condition might find it more difficult to...
A new way to support us – Amazon Smile
As well as donating directly or fundraising through JustGiving, you can now support us every time you shop on Amazon.co.uk. Through Amazon Smile, you can donate 0.5% of the purchase price to us at no extra cost to you. Simply select 'Congenital Adrenal Hyperplasia...
NHS England and NHS Improvement seeks patients and carers to work with the Quality Surveillance Team
A message from NHS England & NHS Improvement: Did you know that you, as a patient or carer, you can join a team who work to help maintain and improve congenital gynae anomalies services in our hospitals? NHS England and NHS Improvement is calling for patients...
A message from Diurnal – Chronocort Development Programme
A message from Diurnal: CH EU-EU-0060 Date of preparation October 2019 Update for patient groups on Chronocort development programme and timetable In response to questions we have received from patients, we would like to provide a short update about the plans and...
A huge thanks to The National Lottery Community Fund
We're pleased to announce the arrival of our long-awaited new Dell laptops! We were extremely lucky to receive a grant for these from The National Lottery Community fund, and thankful too to Dell who worked with us to make this possible. These laptops will enable the...
Cambridge Brain and Behaviour Study – Volunteers Wanted!
The CamBABS team at Cambridge University and Cambridge University Hospitals is looking for men and women with classic CAH (either salt wasting or simple virilising) to help with their research. They are conducting a study aimed at understanding how hormone exposure...
Scottish Equality Network call for evidence on variations of sex characteristics
The Scottish Equality Network would like to hear your views and opinions on variations of sex characteristics ahead of Government consultation. If you're a Scottish resident at all affected by VSD/DSD or intersex matters, please spare the time to respond to the survey...
Intramuscular Injector Survey
"Exploring a solution to improve the safety of patients with Adrenal and Pituitary conditions in emergency situations". One of our members is performing a study into how those with adrenal and pituitary conditions can be safer in emergency situations. We're sure...
Adult Social – 26th January 2020 – Bristol
Join us for an adult social - a meeting run by and for adults living with CAH. Meet others with CAH in a safe and supportive place. Sunday 26th January 2020 1pm -4:30pm (followed by drinks or tea in the bar) Golden Guinea Pub, 19 Guinea Street, Bristol, BS1 6SX...