News

Vote for ‘Journey of Hope’!

Vote for ‘Journey of Hope’!

A message from 'Same but Different': ‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the...

Donate with Bank Transfer through JustGiving

Donate with Bank Transfer through JustGiving

You can now send donations to us using bank transfer through JustGiving.  No setup is necessary and the process using bank-grade security.  Read more at JustGiving. Recent Blog Posts

Family Meeting in Newry, Ireland – 9th February, 2-6pm

Family Meeting in Newry, Ireland – 9th February, 2-6pm

The annual Ireland family meeting will be held on Sunday, 9th February from 2pm - 6pm at Bessbrook Community Centre, Ireland. Places are limited so for more information and to book a place, please contact Jo & Mark - our area coordinators for Ireland - through the...

CAH treatment may be linked to lower bone mineral density

CAH treatment may be linked to lower bone mineral density

Higher glucocorticoid doses for adults with CAH may be associated with lower bone mineral density, especially among women and those prescribed prednisolone, according to findings published in Clinical Endocrinology. Read more on Healio. Recent Blog Posts

Survey for women with CAH aged 25-64.

Survey for women with CAH aged 25-64.

Are you a woman with a diagnosis of the condition congenital adrenal hyperplasia (CAH) aged between 25 and 64 years? We are endocrinology doctors at Newcastle University in the UK investigating whether some women with this condition might find it more difficult to...

A new way to support us – Amazon Smile

A new way to support us – Amazon Smile

As well as donating directly or fundraising through JustGiving, you can now support us every time you shop on Amazon.co.uk. Through Amazon Smile,  you can donate 0.5% of the purchase price to us at no extra cost to you.  Simply select 'Congenital Adrenal Hyperplasia...

A message from Diurnal – Chronocort Development Programme

A message from Diurnal – Chronocort Development Programme

A message from Diurnal: CH EU-EU-0060 Date of preparation October 2019 Update for patient groups on Chronocort development programme and timetable In response to questions we have received from patients, we would like to provide a short update about the plans and...

A huge thanks to The National Lottery Community Fund

A huge thanks to The National Lottery Community Fund

We're pleased to announce the arrival of our long-awaited new Dell laptops! We were extremely lucky to receive a grant for these from The National Lottery Community fund, and thankful too to Dell who worked with us to make this possible. These laptops will enable the...

Cambridge Brain and Behaviour Study – Volunteers Wanted!

Cambridge Brain and Behaviour Study – Volunteers Wanted!

The CamBABS team at Cambridge University and Cambridge University Hospitals is looking for men and women with classic CAH (either salt wasting or simple virilising) to help with their research. They are conducting a study aimed at understanding how hormone exposure...