News

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

Genomics England – The Generation Study – CAH included

Genomics England – The Generation Study – CAH included

The Generation Study is being carried out by Genomics England in partnership with the NHS. It is exploring the possible use of genome sequencing in newborn babies to identify a wide range of rare genetic conditions alongside the routine newborn blood spot screening....

2024 CAH Support Group Conference, 9th June, Tamworth

2024 CAH Support Group Conference, 9th June, Tamworth

SUNDAY 9 JUNE 2022 9.30 -16:00 DRAYTON MANOR RESORT, TAMWORTH, B78 3TW www.draytonmanor.co.uk Those living with CAH and their families and friends are invited to the biennial conference of CAH Support Group. Visit our online booking page here to find out more or book...

New Drug Research Study (LuAG13909): Participants wanted

New Drug Research Study (LuAG13909): Participants wanted

 The study, run by Guy's and St Thomas' NHS Foundation Trust, London UK, will evaluate the effects of different doses of the study drug, Lu AG13909 in adult participants with congenital adrenal hyperplasia (CAH). Individuals with CAH have abnormally low levels of...

Research – Emotion Perception in Youth with CAH

Research – Emotion Perception in Youth with CAH

"Altered Emotion Perception Linked to Structural Brain Differences in Youth With Congenital Adrenal Hyperplasia" From Volume 25, Fall 2023 Cares Foundataion Newsletter "Conclusion: Findings suggest that youth with CAH perceive emotive stimuli as more unpleasant....

Research findings – The PULSES trial

Research findings – The PULSES trial

Ultradian hydrocortisone replacement alters neuronal processing, emotional ambiguity, affect and fatigue in adrenal insufficiency: The PULSES trial First published - 19 October 2023 "The PULSES study has shown that the pattern of cortisol presentation, even at an...

New page launched – Life with CAH

New page launched – Life with CAH

We're pleased to announce the launch of a new page - "Life with CAH". Here you can find all sorts of information and ideas about living with CAH - whether you have the condition yourself, or know or care for someone else who does. We've included three key sections -...

Education & Social event – Sunday 1st October 2023, Coventry UK

Education & Social event – Sunday 1st October 2023, Coventry UK

The CAH Support Group are running an educational/social day at Coventry University (UK) on Sunday 1st October 2023, which will run from 11am – 4pm. The meeting will primarily be of interest to parents of children with CAH, although everyone with an interest in CAH...

CAH patient’s survey from CAH International

CAH patient’s survey from CAH International

Last year, CAH International held a first joint kick-off, on the basis of which working groups for research, surgery and standard of care were also formed. The Standard of Care Working Group are mainly concerned with the issue of care at the moment. In order to learn...

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

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