News
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Article: Ageing with CAH
Our very own Kaz Williams discusses living and ageing as a female adult with classical salt-wasting congenital adrenal hyperplasia (CAH). Read the full article in the Winter 2021 issue of 'The Endocrinologist'. Recent Blog Posts
Video: Sick-day rules & emergency hydrocortisone injections
The endocrine team at Liverpool University Hospital have released a short video to educate patients with adrenal insufficiency about management of their steroid replacement therapy. It includes a section about sick-day rules, as well as sections about how to...
Article: Acute Illness and Death in Children With Adrenal Insufficiency
A recently published article from Royal Manchester Children’s Hospital, the University of Manchester, and Manchester Royal Infirmary concludes that "during intercurrent illness episodes, parents reliably increased oral hydrocortisone doses but rarely administered...
Petition: Create a publicly owned manufacturer for off-patent, generic drugs in the UK
Price gouging is where companies substantially raise prices above costs of production and investment, often due to a lack of competition. Generic drugs are non-brand, off-patent medicines. They benefit from a legal loophole, facing much less price regulation than...
Article: A review of menstrual sex education and management in women with congenital adrenal hyperplasia
A recent article titled "A review of menstrual sex education and management in women with congenital adrenal hyperplasia", concludes that "from a research perspective, championing the development of evidence-informed products that are accessible to the parents of...
Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”
A recently published small case series of patients with adrenal insufficiency (though none with CAH) who had incipient / actual adrenal crises following the coronavirus vaccine concludes that: "In individuals with adrenal insufficiency, adverse reactions to the...
Fundraiser in aid of Living with CAH & 120Marathonman Charities
The last week of Marathonman is here - almost 120 marathons completed For more information, see the link below. Join Graham Wilson and his fantastic team in as many or as few steps as you would like to. He will walk an average of 60,000 steps per marathon giving a...
Webinar: Accessing Mental Health Services – 10th May, 7pm UK time.
WEBINAR: Accessing Mental Health Services Interconnected UK (Icon UK) is pleased to invite you to a webinar to learn more about mental health services in the public, private and third sectors in the UK. Some people with variations in sex characteristics have had good...
Call out for young women with CAH!
DSD Families are recruiting young adults aged 16-25 with experience of variations of sex development to help shape and develop some of their peer psychosocial support ideas. Since CAH falls under the variations of sex development umbrella, they would like to speak to...
Society for Endocrinology statement on COVID-19 vaccines
The Society for Endocrinology has released a statement on COVID-19 vaccines for patients with endocrine conditions - which states: "We are not aware of any specific side effects of a COVID-19 vaccine that would be unique to people with endocrine conditions" and that...
Virtual Adult Meeting – Sunday 13th December, 11am UK time
The Support Group will be running a virtual Adult Meeting on Sunday 13th December at 11am (UK time). This is a great chance to meet other adults with CAH and have a friendly chat. If you would like to join us, please contact Kaz (her details are on the 'Meet the Team'...