News

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

Annual General Meeting – 15th October, 2pm UK time via MS Teams

Annual General Meeting – 15th October, 2pm UK time via MS Teams

The CAH Support Group is pleased to announce its 4th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 15th October 2022 at 2pm UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet the...

Article: Health Status of Children & Young People With CAH In The UK

Article: Health Status of Children & Young People With CAH In The UK

A recently published reseach paper "Health Status of Children and Young Persons with Congenital Adrenal Hyperplasia in the UK (CAH-UK): a cross-sectional multi-centre study" in the in European Journal of Endocrinology concludes that '(there is) an increased prevalence...

Reprofutures Research Project – Material now available

Reprofutures Research Project – Material now available

Reprofutures is a co-created research project which took place from 2019-2022. Its objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility,...

CAH Support Group Conference – 12th June, Bristol

CAH Support Group Conference – 12th June, Bristol

SUNDAY 12 JUNE 2022 9.30 -16:30 FUTURE INNS HOTEL, BOND STREET, BRISTOL www.futureinns.co.uk/ Those living with CAH and their families and friends are invited to the biennial conference of CAH support group.
 Highlights of the event will include: Presentations from...

Holiday season? Tips & reminders from ADSHG

Holiday season? Tips & reminders from ADSHG

As we approach holiday season, we thought we'd share an excellent article from the Addison's Disease Self-Help Group (ADSHG). If you've got CAH - wherever you're going on holiday - it's always best to be prepared and know what to do in an emergency. Read the ADSHG...

Fundraiser in aid of Living with CAH & 120Marathonman Charities

Fundraiser in aid of Living with CAH & 120Marathonman Charities

UPDATE - March 2022 120 MarathonMan has completed the challenge! 120 marathons in 120 days 30 months training Over £45,000 raised for various charities including Living with CAH. Vote for Graham (120 MarathonMan) as Yorkshire Fundraiser of the year 2022 here:...

Article: Ageing with CAH

Article: Ageing with CAH

Our very own Kaz Williams discusses living and ageing as a female adult with classical salt-wasting congenital adrenal hyperplasia (CAH). Read the full article in the Winter 2021 issue of 'The Endocrinologist'. Recent Blog Posts

Video: Sick-day rules & emergency hydrocortisone injections

Video: Sick-day rules & emergency hydrocortisone injections

The endocrine team at Liverpool University Hospital have released a short video to educate patients with adrenal insufficiency about management of their steroid replacement therapy. It includes a section about sick-day rules, as well as sections about how to...