News

A message from 'Same but Different': ‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the...

The Society for Endocrinology, the Association of Anaesthetists and the Royal College of Physicians have published new "Guidelines for the management of glucocorticoids during the peri-operative period for patients with adrenal insufficiency." You can access the...

You can now send donations to us using bank transfer through JustGiving.  No setup is necessary and the process using bank-grade security.  Read more at JustGiving. Recent Blog Posts

The annual Ireland family meeting will be held on Sunday, 9th February from 2pm - 6pm at Bessbrook Community Centre, Ireland. Places are limited so for more information and to book a place, please contact Jo & Mark - our area coordinators for Ireland - through the...

Higher glucocorticoid doses for adults with CAH may be associated with lower bone mineral density, especially among women and those prescribed prednisolone, according to findings published in Clinical Endocrinology. Read more on Healio. Recent Blog Posts

Same But Different are hosting a Coffee and Share meeting in Mold on 30th January, where anyone affected by rare disease can meet to chat and share their experiences over a cup of coffee and a slice of cake. Glow Beauty will be present too, and will treat guests to a...

Are you a woman with a diagnosis of the condition congenital adrenal hyperplasia (CAH) aged between 25 and 64 years? We are endocrinology doctors at Newcastle University in the UK investigating whether some women with this condition might find it more difficult to...

As well as donating directly or fundraising through JustGiving, you can now support us every time you shop on Amazon.co.uk. Through Amazon Smile,  you can donate 0.5% of the purchase price to us at no extra cost to you.  Simply select 'Congenital Adrenal Hyperplasia...

A message from  NHS England & NHS Improvement: Did you know that you, as a patient or carer, you can join a team who work to help maintain and improve congenital gynae anomalies services in our hospitals?   NHS England and NHS Improvement is calling for patients...

A message from Diurnal: CH EU-EU-0060 Date of preparation October 2019 Update for patient groups on Chronocort development programme and timetable In response to questions we have received from patients, we would like to provide a short update about the plans and...

We're pleased to announce the arrival of our long-awaited new Dell laptops! We were extremely lucky to receive a grant for these from The National Lottery Community fund, and thankful too to Dell who worked with us to make this possible. These laptops will enable the...

The CamBABS team at Cambridge University and Cambridge University Hospitals is looking for men and women with classic CAH (either salt wasting or simple virilising) to help with their research. They are conducting a study aimed at understanding how hormone exposure...