News
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Genomics England – The Generation Study – CAH included
The Generation Study is being carried out by Genomics England in partnership with the NHS. It is exploring the possible use of genome sequencing in newborn babies to identify a wide range of rare genetic conditions alongside the routine newborn blood spot screening....
2024 CAH Support Group Conference, 9th June, Tamworth
SUNDAY 9 JUNE 2022 9.30 -16:00 DRAYTON MANOR RESORT, TAMWORTH, B78 3TW www.draytonmanor.co.uk Those living with CAH and their families and friends are invited to the biennial conference of CAH Support Group. Visit our online booking page here to find out more or book...
Online Meeting for Adults with CAH – 3rd February 2024, 10:30-12:30 UK time
This is an opportunity to meet other adults with CAH in a safe and supportive environment, where we share experiences, learn about current developments and have the opportunity to socialise with others in the CAH community. We're pleased to announce that we'll be...
New Drug Research Study (LuAG13909): Participants wanted
The study, run by Guy's and St Thomas' NHS Foundation Trust, London UK, will evaluate the effects of different doses of the study drug, Lu AG13909 in adult participants with congenital adrenal hyperplasia (CAH). Individuals with CAH have abnormally low levels of...
Research – Emotion Perception in Youth with CAH
"Altered Emotion Perception Linked to Structural Brain Differences in Youth With Congenital Adrenal Hyperplasia" From Volume 25, Fall 2023 Cares Foundataion Newsletter "Conclusion: Findings suggest that youth with CAH perceive emotive stimuli as more unpleasant....
Annual General Meeting – 26th November, 10:30am UK time via MS Teams
The CAH Support Group is pleased to announce its 5th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 26th November 2023 at 10:30 am UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet...
Research findings – The PULSES trial
Ultradian hydrocortisone replacement alters neuronal processing, emotional ambiguity, affect and fatigue in adrenal insufficiency: The PULSES trial First published - 19 October 2023 "The PULSES study has shown that the pattern of cortisol presentation, even at an...
New page launched – Life with CAH
We're pleased to announce the launch of a new page - "Life with CAH". Here you can find all sorts of information and ideas about living with CAH - whether you have the condition yourself, or know or care for someone else who does. We've included three key sections -...
Education & Social event – Sunday 1st October 2023, Coventry UK
The CAH Support Group are running an educational/social day at Coventry University (UK) on Sunday 1st October 2023, which will run from 11am – 4pm. The meeting will primarily be of interest to parents of children with CAH, although everyone with an interest in CAH...
Participants wanted – Exploring support needs of young people with CAH
Researchers from the Centre for Appearance Research (CAR) at the University of the West of England (UWE), Bristol are working on a project to better understand the support needs of young people with a difference in sex development (dsd) and develop support based on...
CAH patient’s survey from CAH International
Last year, CAH International held a first joint kick-off, on the basis of which working groups for research, surgery and standard of care were also formed. The Standard of Care Working Group are mainly concerned with the issue of care at the moment. In order to learn...
Network Event – 24th June 2023 – Royal Hospital for Children &Young People (Edinburgh, EH16 4SA, UK)
The Scottish Paediatric Endocrine Group (SPEG) is holding a Network Family Event on Saturday 24th June 2023 at 11:00-15:00 at the Royal Hospital for Children and Young People (Edinburgh, EH16 4SA). This is a free event aimed at families with an interest in Adrenal...