Annual General Meeting – 26th November, 10:30am UK time via MS Teams
The CAH Support Group is pleased to announce its 5th Annual General Meeting (AGM).
It will be held virtually, via MS Teams, on 26th November 2023 at 10:30 am UK time.
If you’d like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet the Team’ page) .
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...