Participants wanted – Exploring support needs of young people with CAH

Researchers from the Centre for Appearance Research (CAR) at the University of the West of England (UWE), Bristol are working on a project to better understand the support needs of young people with a difference in sex development (dsd) and develop support based on this research.

They would like to include the voices of people with lived experience as much as possible in the design and implementation of the research and so are currently looking for young people with a dsd (aged 16-25 years) as well as parents of individuals with dsds to take part as User Representatives. This is a paid opportunity and would involve completing anonymous online surveys and taking part in online meetings with other User Representatives (separate meetings for parents and young people). These will focus on understanding peoples’ experiences, what kind of support is missing and needed for young people with dsds, and how we should approach the main part of our research (e.g., what questions to ask, where to find participants). 

There will be opportunities throughout the process to talk without the researchers present as well as provide anonymous feedback and suggestions – this is to help make sure User Representatives’ voices are heard and the project is going in the direction they feel is right. The meetings will be flexible to respect school, work, and social commitments, and would be a time commitment of no more than 5 hours total.   

The researchers are prioritising creating a space where everyone feels comfortable to provide honest input and feedback and welcome any young people or parents who are interested in the project. 

See the flier below, which includes contact details of the researchers if you’re interested in taking part.

REMINDER: The Living with CAH Support Group and UWE Bristol are not the same organisation. Please take this into consideration. We (the Living with CAH Support Group) are not responsible for anything that you share with UWE Bristol. See Section 10 of our Privacy Policy here.