Webinar: Finding Your Way – A Parent’s Guide to Rare Disease
Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent’s Guide to Rare Disease”. Written by parents, for parents, this new guide offers practical support, trusted resources and hope for families navigating a rare genetic condition.
The event will be hosted by Sarah Wynn, CEO of Unique and Frances Elmslie, Consultant Clinical Geneticist.
Hear the stories behind the guide and learn from parents and authors Adam Clatworthy and Melanie Dixon about their own quest to find the right support. They will be sharing their personal experiences to help families to feel less alone.
Everyone is welcome to join!
You can register here: Finding your way: A Parent’s Guide to Rare Disease
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