Online Meeting for Adults with CAH – 3rd February 2024, 10:30-12:30 UK time
This is an opportunity to meet other adults with CAH in a safe and supportive environment, where we share experiences, learn about current developments and have the opportunity to socialise with others in the CAH community.
We’re pleased to announce that we’ll be joined by Dr. Velusamy Anand who will present on some exciting new clinical research taking place in the UK looking at new treatment for CAH.
The meeting will be held over Microsoft Teams from 10:30 to 12:30 UK time on 3rd February 2024.
If you’d like to attend, contact Kaz via our Meet the team page.
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...