New page launched – Life with CAH

We’re pleased to announce the launch of a new page – “Life with CAH”. Here you can find all sorts of information and ideas about living with CAH – whether you have the condition yourself, or know or care for someone else who does.
We’ve included three key sections – Health & Emergencies, Growing up with CAH, and Adult life with CAH.
Visit the page here – https://www.livingwithcah.com/life-with-cah/
We hope you’ll find the information on this new page useful!
Recent Blog Posts
Patient Survey: Improving the Delivery of Genetic Results
CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey. When you received these reults might not have been at the best time - pehaps you received genomic test results while you were driving, on...
Webinar: Finding Your Way – A Parent’s Guide to Rare Disease
Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent's Guide to Rare Disease”. Written by parents, for parents, this new guide offers practical support,...
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...


