New page launched – Life with CAH
We’re pleased to announce the launch of a new page – “Life with CAH”. Here you can find all sorts of information and ideas about living with CAH – whether you have the condition yourself, or know or care for someone else who does.
We’ve included three key sections – Health & Emergencies, Growing up with CAH, and Adult life with CAH.
Visit the page here – https://www.livingwithcah.com/life-with-cah/
We hope you’ll find the information on this new page useful!
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...