News

Reprofutures is a co-created research project which took place from 2019-2022. Its objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility,...

Watch four leading patient advocacy groups for adrenal insufficiency (including our own Kaz Williams), with Endocrinology experts Dr Helen Simpson and Professor Simon Pearce deliver a 30-minute session on the topic: ”Support Groups for Adrenal Insufficiency Patients...

SUNDAY 12 JUNE 2022 9.30 -16:30 FUTURE INNS HOTEL, BOND STREET, BRISTOL www.futureinns.co.uk/ Those living with CAH and their families and friends are invited to the biennial conference of CAH support group.
 Highlights of the event will include: Presentations from...

As we approach holiday season, we thought we'd share an excellent article from the Addison's Disease Self-Help Group (ADSHG). If you've got CAH - wherever you're going on holiday - it's always best to be prepared and know what to do in an emergency. Read the ADSHG...

UPDATE - March 2022 120 MarathonMan has completed the challenge! 120 marathons in 120 days 30 months training Over £45,000 raised for various charities including Living with CAH. Vote for Graham (120 MarathonMan) as Yorkshire Fundraiser of the year 2022 here:...

We will be running an online meeting for adult women with CAH on Saturday 23rd April at 10:00-12:00 UK time.  Come along and meet others in a friendly, safe and supportive space. For more information and to register, please contact Kaz, our Adult Support Group...

Our very own Kaz Williams discusses living and ageing as a female adult with classical salt-wasting congenital adrenal hyperplasia (CAH). Read the full article in the Winter 2021 issue of 'The Endocrinologist'. Recent Blog Posts

The endocrine team at Liverpool University Hospital have released a short video to educate patients with adrenal insufficiency about management of their steroid replacement therapy. It includes a section about sick-day rules, as well as sections about how to...

A recently published article from Royal Manchester Children’s Hospital, the University of Manchester, and Manchester Royal Infirmary concludes that "during intercurrent illness episodes, parents reliably increased oral hydrocortisone doses but rarely administered...

Price gouging is where companies substantially raise prices above costs of production and investment, often due to a lack of competition. Generic drugs are non-brand, off-patent medicines. They benefit from a legal loophole, facing much less price regulation than...

A recent article titled "A review of menstrual sex education and management in women with congenital adrenal hyperplasia", concludes that "from a research perspective, championing the development of evidence-informed products that are accessible to the parents of...

A recently published small case series of patients with adrenal insufficiency (though none with CAH) who had incipient / actual adrenal crises following the coronavirus vaccine concludes that: "In individuals with adrenal insufficiency, adverse reactions to the...