Article: A review of menstrual sex education and management in women with congenital adrenal hyperplasia
A recent article titled “A review of menstrual sex education and management in women with congenital adrenal hyperplasia”, concludes that “from a research perspective, championing the development of evidence-informed products that are accessible to the parents of infants or individuals with CAH and adopting a knowledge management approach in healthcare practice and education settings, should be key priorities in future work to promote sex education for individuals with variations in sex development.”
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...