European Congress of Endocrinology (2021) – The Patients’ Voice – Video

Watch four leading patient advocacy groups for adrenal insufficiency (including our own Kaz Williams), with Endocrinology experts Dr Helen Simpson and Professor Simon Pearce deliver a 30-minute session on the topic: ”Support Groups for Adrenal Insufficiency Patients Bridging the Clinic Gap. Enhancing support for you and your patients while healthcare systems recover from COVID.”
Watch the video on YouTube here.
Credit to the Addison’s Disease Self-Help Group – https://www.addisonsdisease.org.uk
Recent Blog Posts
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...
Liquid Hydrocortisone Discontinued in the UK
Liquid hydrocortisone injections have been discontinued in the UK, affecting emergency treatment for people with adrenal insufficiency. This follows the supply shortage reported in February 2025 -...
Medicine security – a national UK priority.
Concerns about medicines shortages in the UK have been highlighted in recent analysis from the House of Lords Public Services Committee and the Royal Pharmaceutical Society. The House of Lords Public Services Committee warns that medicines supply should be treated as...


