Reprofutures Research Project – Material now available
Reprofutures is a co-created research project which took place from 2019-2022. Its objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility, relationships, intimacy, and parenting (biological and non-biological).
A number of people with CAH took part in this research project, and we are pleased to be able to share the materials produced by the project.
They are available on Reprofutures’ website here:
https://sites.exeter.ac.uk/reprofutures/
The project was funded by the Exeter Engaged Research Exploratory Awards and the Wellcome Centre for Cultures and Environments of Health, University of Exeter.
Recent Blog Posts
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...
Liquid Hydrocortisone Discontinued in the UK
Liquid hydrocortisone injections have been discontinued in the UK, affecting emergency treatment for people with adrenal insufficiency. This follows the supply shortage reported in February 2025 -...
Medicine security – a national UK priority.
Concerns about medicines shortages in the UK have been highlighted in recent analysis from the House of Lords Public Services Committee and the Royal Pharmaceutical Society. The House of Lords Public Services Committee warns that medicines supply should be treated as...