Reprofutures Research Project – Material now available
Reprofutures is a co-created research project which took place from 2019-2022. Its objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility, relationships, intimacy, and parenting (biological and non-biological).
A number of people with CAH took part in this research project, and we are pleased to be able to share the materials produced by the project.
They are available on Reprofutures’ website here:
https://sites.exeter.ac.uk/reprofutures/
The project was funded by the Exeter Engaged Research Exploratory Awards and the Wellcome Centre for Cultures and Environments of Health, University of Exeter.
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Support Group Meeting: London, June 2025
SUNDAY 8 June 2025 11:00-16:00 NVCO, London, N1 9RL A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition. If you are a member of the CAH Support Group, you will receive a password in the latest...
Webinar: The Art of Parenting While Sick – 27 March
The Addison's Disease Self-Help Group (ADSHG) is hosting a webinar titled "The Art of Parenting While Sick" on March 27, 2025. Led by Hilary Hodge, who personally manages her own adrenal insufficiency, the session aims to equip parents with effective, age-appropriate...
Drug shortage alert: injectable hydrocortisone
The Department of Health and Social Care (DHSC) has confirmed an upcoming shortage of hydrocortisone sodium phosphate for emergency injection kits from the end of February 2025, with supply expected to resume in May 2026. Find more information about this on the...