Article: Ageing with CAH
Our very own Kaz Williams discusses living and ageing as a female adult with classical salt-wasting congenital adrenal hyperplasia (CAH).
Read the full article in the Winter 2021 issue of ‘The Endocrinologist’.
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Survey: Help Improve Rare Disease Research
Developing quality statements for rare disease via consensus across the rare disease community The Rare Disease Quality Statement Project is gathering insights from patients, caregivers, and researchers to improve rare disease research and support. Your feedback is...
Support Group Meeting: London, June 2025
SUNDAY 8 June 2025 11:00-16:00 NVCO, London, N1 9RL A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition. If you are a member of the CAH Support Group, you will receive a password in the latest...
Webinar: The Art of Parenting While Sick – 27 March
The Addison's Disease Self-Help Group (ADSHG) is hosting a webinar titled "The Art of Parenting While Sick" on March 27, 2025. Led by Hilary Hodge, who personally manages her own adrenal insufficiency, the session aims to equip parents with effective, age-appropriate...