Patient Survey: Improving the Delivery of Genetic Results

Patient Survey: Improving the Delivery of Genetic Results

Sep 14, 2026

Patient Survey: Improving the Delivery of Genetic Results CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey.  When you received these reults might not have been at the best time – pehaps...
Webinar: Finding Your Way – A Parent’s Guide to Rare Disease

Webinar: Finding Your Way – A Parent’s Guide to Rare Disease

Sep 10, 2026

Webinar: Finding Your Way – A Parent’s Guide to Rare Disease Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent’s Guide to Rare...
New report highlights access gap for innovative medicines

New report highlights access gap for innovative medicines

Jul 27, 2026

New report highlights access gap for innovative medicines The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing...
Article: Adult Quality of Life with CAH

Article: Adult Quality of Life with CAH

May 18, 2026

Article: Adult Quality of Life with CAH A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews...
Liquid Hydrocortisone Discontinued in the UK

Liquid Hydrocortisone Discontinued in the UK

Mar 27, 2026

Liquid Hydrocortisone Discontinued in the UK Liquid hydrocortisone injections have been discontinued in the UK, affecting emergency treatment for people with adrenal insufficiency. This follows the supply shortage reported in February 2025 –...

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