Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison’s disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management.
The project is being led by Edge Hill University in partnership with the British Society for Paediatric Endocrinology and Diabetes (BSPED), with support from patient organisations including Living with CAH. The team is seeking input from young people aged 10–18 and parents of children with adrenal insufficiency to ensure the resources meet the real needs of families. Participation is online and requires only a few hours of your time.
This is an excellent opportunity to contribute to guidance that could benefit thousands of children, young people and families across the UK.
Find out more and sign up here:
https://www.surveymonkey.com/r/8MXLXRT
You can also read the full announcement from the Addison’s Disease Self-Help Group:
https://www.addisonsdisease.org.uk/news/take-part-improve-sick-day-guidance-for-young-people
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