News

Are you a woman with a diagnosis of the condition congenital adrenal hyperplasia (CAH) aged between 25 and 64 years? We are endocrinology doctors at Newcastle University in the UK investigating whether some women with this condition might find it more difficult to...

As well as donating directly or fundraising through JustGiving, you can now support us every time you shop on Amazon.co.uk. Through Amazon Smile,  you can donate 0.5% of the purchase price to us at no extra cost to you.  Simply select 'Congenital Adrenal Hyperplasia...

A message from  NHS England & NHS Improvement: Did you know that you, as a patient or carer, you can join a team who work to help maintain and improve congenital gynae anomalies services in our hospitals?   NHS England and NHS Improvement is calling for patients...

A message from Diurnal: CH EU-EU-0060 Date of preparation October 2019 Update for patient groups on Chronocort development programme and timetable In response to questions we have received from patients, we would like to provide a short update about the plans and...

We're pleased to announce the arrival of our long-awaited new Dell laptops! We were extremely lucky to receive a grant for these from The National Lottery Community fund, and thankful too to Dell who worked with us to make this possible. These laptops will enable the...

The CamBABS team at Cambridge University and Cambridge University Hospitals is looking for men and women with classic CAH (either salt wasting or simple virilising) to help with their research. They are conducting a study aimed at understanding how hormone exposure...

The Scottish Equality Network would like to hear your views and opinions on variations of sex characteristics ahead of Government consultation. If you're a Scottish resident at all affected by VSD/DSD or intersex matters, please spare the time to respond to the survey...

"Exploring a solution to improve the safety of patients with Adrenal and Pituitary conditions in emergency situations". One of our members is performing a study into how those with adrenal and pituitary conditions can be safer in emergency situations. We're sure...

Join us for an adult social - a meeting run by and for adults living with CAH. Meet others with CAH in a safe and supportive place. Sunday 26th January 2020 1pm -4:30pm (followed by drinks or tea in the bar) Golden Guinea Pub, 19 Guinea Street, Bristol, BS1 6SX...

Welcome to our new website – we hope you like it!  We’d like to thank the Society for Endocrinology and Midas Creative for their support in making it happen. We’ve got big plans for our new site and this is just the beginning...Over the new few months we’ll be opening...

Alkindi® is the first replacement therapy specially designed for infants, children and adolescents with paediatric adrenal insufficiency Adrenal insufficiency is caused by a lack of the stress hormone cortisol – which can be fatal This new therapy, which has been...

Please spare the time (if you can) to respond to the survey below, to ensure the views of people/families affected by CAH are taken into account when decisions are made with regard to future treatment etc. Read more Recent Blog Posts