A huge thanks to The National Lottery Community Fund
We’re pleased to announce the arrival of our long-awaited new Dell laptops!
We were extremely lucky to receive a grant for these from The National Lottery Community fund, and thankful too to Dell who worked with us to make this possible.
These laptops will enable the Committee to better serve our members by helping us to work more closely, efficiently and reliably.
A big thank you!!
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Survey: Help Improve Rare Disease Research
Developing quality statements for rare disease via consensus across the rare disease community The Rare Disease Quality Statement Project is gathering insights from patients, caregivers, and researchers to improve rare disease research and support. Your feedback is...
Support Group Meeting: London, June 2025
SUNDAY 8 June 2025 11:00-16:00 NVCO, London, N1 9RL A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition. If you are a member of the CAH Support Group, you will receive a password in the latest...
Webinar: The Art of Parenting While Sick – 27 March
The Addison's Disease Self-Help Group (ADSHG) is hosting a webinar titled "The Art of Parenting While Sick" on March 27, 2025. Led by Hilary Hodge, who personally manages her own adrenal insufficiency, the session aims to equip parents with effective, age-appropriate...