Welcome to the CAH Support Group’s new website!
Welcome to our new website – we hope you like it!
We’d like to thank the Society for Endocrinology and Midas Creative for their support in making it happen.
We’ve got big plans for our new site and this is just the beginning…Over the new few months we’ll be opening our members’ only forum, and adding some news articles about what the Group’s committee members have been up to. Next year, we hope to add even more features…
If you’ve any questions or comments, please let us know through the Contact Us page.
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...
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