Intramuscular Injector Survey
“Exploring a solution to improve the safety of patients with Adrenal and Pituitary conditions in emergency situations”.
One of our members is performing a study into how those with adrenal and pituitary conditions can be safer in emergency situations. We’re sure everyone will agree that this is a subject of great interest to all involved with the Support Group.
All feedback is greatly appreciated as it will help to inform research and designs further down the line.
Due to the ethics policy in place at the university, only over 18s can take part in the survey.
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...