Intramuscular Injector Survey
“Exploring a solution to improve the safety of patients with Adrenal and Pituitary conditions in emergency situations”.
One of our members is performing a study into how those with adrenal and pituitary conditions can be safer in emergency situations. We’re sure everyone will agree that this is a subject of great interest to all involved with the Support Group.
All feedback is greatly appreciated as it will help to inform research and designs further down the line.
Due to the ethics policy in place at the university, only over 18s can take part in the survey.
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Survey: Lived experience & Quality of life
Call for participants - "Exploring the lived experiences and quality of life of individuals affected by CAH" If you're 18 years and over and living with CAH, tell us how CAH affects your life in an individual discussion held at a convenient time face-to-face or...
New NICE Guidelines – identification and management of adrenal insufficiency
The publication of new NICE (National Institute for Health and Care Excellence) guidelines - "Adrenal insufficiency: identification and management" marks a significant advancement in the management and treatment of primary, secondary and tertiary adrenal...
Survey: Paediatric Adrenal Insufficiency Education
This project, led by Edge Hill University is working with NHS clinicians to develop national education standards and resources for sick day/emergency management of adrenal insufficiency in children and young people. The project would like to hear the views of parents...