Vote for ‘Journey of Hope’!
A message from ‘Same but Different’:
‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the reality of both the search for a diagnosis and the impact of the diagnostic moment. Above all else it compels us to think about the power of genetic diagnosis to reframe how we view our relationships, how we understand each other and most significantly, how a different kind of ‘hope’ is possible.
Our film ‘Journey of Hope’, won best film in the Industry/Charity collaboration category at the Rare Disease Film Festival in Regent St London.
But we need your help!
Voting has now opened for the public to select their favourite film and we would love your support. As winners we could reach so many more people and show the rare disease diagnostic journeys, which is so important to ensure change happens.
You can watch and vote for Journey of Hope by following this link: www.samebutdifferent.org.uk/journeyofhope
Voting closes on the 28th February at 12pm GMT.
Recent Blog Posts
Patient Survey: Improving the Delivery of Genetic Results
CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey. When you received these reults might not have been at the best time - pehaps you received genomic test results while you were driving, on...
Webinar: Finding Your Way – A Parent’s Guide to Rare Disease
Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent's Guide to Rare Disease”. Written by parents, for parents, this new guide offers practical support,...
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...