Vote for ‘Journey of Hope’!
A message from ‘Same but Different’:
‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the reality of both the search for a diagnosis and the impact of the diagnostic moment. Above all else it compels us to think about the power of genetic diagnosis to reframe how we view our relationships, how we understand each other and most significantly, how a different kind of ‘hope’ is possible.
Our film ‘Journey of Hope’, won best film in the Industry/Charity collaboration category at the Rare Disease Film Festival in Regent St London.
But we need your help!
Voting has now opened for the public to select their favourite film and we would love your support. As winners we could reach so many more people and show the rare disease diagnostic journeys, which is so important to ensure change happens.
You can watch and vote for Journey of Hope by following this link: www.samebutdifferent.org.uk/journeyofhope
Voting closes on the 28th February at 12pm GMT.
Recent Blog Posts
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 24th April 2020 The Lead Editors of the European Journal of Endocrinology (EJE) have commissioned a...
The CAH support group has been working with a group called ‘Adrenal Causes Together’ during the Covid-19 pandemic set-up by the Addison’s Disease Self-Help Group. Patient support groups representing a range of different conditions from UK, Europe, Australia and the US...
NCEPOD (National Confidential Enquiry into Patient Outcome and Death) are developing a study aimed at service users to look at the transition of care from child to adult healthcare services. If you're interested in taking part - read more on NCEPOD's website. Recent...