Vote for ‘Journey of Hope’!

Feb 22, 2020

A message from ‘Same but Different’:

‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the reality of both the search for a diagnosis and the impact of the diagnostic moment. Above all else it compels us to think about the power of genetic diagnosis to reframe how we view our relationships, how we understand each other and most significantly, how a different kind of ‘hope’ is possible.

Our film ‘Journey of Hope’, won best film in the Industry/Charity collaboration category at the Rare Disease Film Festival in Regent St London.

But we need your help!

Voting has now opened for the public to select their favourite film and we would love your support. As winners we could reach so many more people and show the rare disease diagnostic journeys, which is so important to ensure change happens.

You can watch and vote for Journey of Hope by following this link: www.samebutdifferent.org.uk/journeyofhope

Voting closes on the 28th February at 12pm GMT.

Recent Blog Posts

What you should know about COVID-19 – updated 24th April

What you should know about COVID-19 – updated 24th April

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 24th April 2020 The Lead Editors of the European Journal of Endocrinology (EJE) have commissioned a...

Survey: COVID-19 and Adrenal Insufficiency

Survey: COVID-19 and Adrenal Insufficiency

The CAH Support Group has been working as part of the Adrenal Causes Together (ACT) group for the last 8 months and one of the many positive outcomes of this has been the development of this survey - 'COVID-19 and Adrenal Insufficiency'. The survey is to help...

Virtual Family Meeting – 22nd November, 10am UK time

Virtual Family Meeting – 22nd November, 10am UK time

The Support Group will be running a virtual Family Meeting on Sunday 22nd November at 10am (UK time). We will have Dr Nils Krone from Sheffield online with us for the first hour, to answer any questions you may have, and we will have time afterwards to chat and...

Updated NHS Steroid Card Released

Updated NHS Steroid Card Released

A new NHS steroid card has been released - it's been developed by the Society for Endocrinology (SfE), Royal College of Physicians (RCP) and NHS England and NHS Improvement (NHSE&I), to be carried by patients at risk of adrenal crisis. How do I get a copy of the...