Vote for ‘Journey of Hope’!
A message from ‘Same but Different’:
‘Journey of Hope’ is a short film offering a glimpse in to the lives of families where children have received a rare genomic diagnosis. In a world where labels and diagnosis are often framed negatively, this film highlights the reality of both the search for a diagnosis and the impact of the diagnostic moment. Above all else it compels us to think about the power of genetic diagnosis to reframe how we view our relationships, how we understand each other and most significantly, how a different kind of ‘hope’ is possible.
Our film ‘Journey of Hope’, won best film in the Industry/Charity collaboration category at the Rare Disease Film Festival in Regent St London.
But we need your help!
Voting has now opened for the public to select their favourite film and we would love your support. As winners we could reach so many more people and show the rare disease diagnostic journeys, which is so important to ensure change happens.
You can watch and vote for Journey of Hope by following this link: www.samebutdifferent.org.uk/journeyofhope
Voting closes on the 28th February at 12pm GMT.
Recent Blog Posts
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 4th Feburary 2021 The Addison's Disease Self-Help Group has published guidance in conjuction with a...
DSD Families are recruiting young adults aged 16-25 with experience of variations of sex development to help shape and develop some of their peer psychosocial support ideas. Since CAH falls under the variations of sex development umbrella, they would like to speak to...
The Society for Endocrinology has released a statement on COVID-19 vaccines for patients with endocrine conditions - which states: "We are not aware of any specific side effects of a COVID-19 vaccine that would be unique to people with endocrine conditions" and that...