Support Group Meeting: London, June 2025
SUNDAY 8 June 2025 11:00-16:00
NVCO, London, N1 9RL
A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition.
If you are a member of the CAH Support Group, you will receive a password in the latest newsletter to enable you to book at the discounted member rate. If you’ve lost the password or didn’t receive the newsletter, please contact us.
Visit our online booking page here to find out more or book a place.
Recent Blog Posts
New report highlights access gap for innovative medicines
The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...
Help Shape New UK Sick Day Guidance for Young People with Adrenal Insufficiency
Young people with adrenal insufficiency (including CAH and Addison's disease) and parents/carers are being invited to help shape new UK-wide resources on sick day rules and emergency management. The project is being led by Edge Hill University in partnership with the...
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...