NCEPOD study seeks opinions on transition from child to adult heathcare
NCEPOD (National Confidential Enquiry into Patient Outcome and Death) are developing a study aimed at service users to look at the transition of care from child to adult healthcare services.
If you’re interested in taking part – read more on NCEPOD’s website.
Recent Blog Posts
What you should know about COVID-19 – updated 24th April
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 24th April 2020 The Lead Editors of the European Journal of Endocrinology (EJE) have commissioned a...
Request for feedback: Proposed policy for gonadal & genital surgery for infants and children with DSD
NHS England has proposed a new policy around gonadal and genital surgery in infants and children with DSD (difference in sex development). A key part of the proposed policy is that ‘surgery will not be available as a routine treatment option.... until the individual...
Survey: COVID-19 and Adrenal Insufficiency
The CAH Support Group has been working as part of the Adrenal Causes Together (ACT) group for the last 8 months and one of the many positive outcomes of this has been the development of this survey - 'COVID-19 and Adrenal Insufficiency'. The survey is to help...
Virtual Family Meeting – 22nd November, 10am UK time
The Support Group will be running a virtual Family Meeting on Sunday 22nd November at 10am (UK time). We will have Dr Nils Krone from Sheffield online with us for the first hour, to answer any questions you may have, and we will have time afterwards to chat and...