NCEPOD study seeks opinions on transition from child to adult heathcare
NCEPOD (National Confidential Enquiry into Patient Outcome and Death) are developing a study aimed at service users to look at the transition of care from child to adult healthcare services.
If you’re interested in taking part – read more on NCEPOD’s website.
Recent Blog Posts
What you should know about COVID-19 – updated 4th February
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 4th Feburary 2021 The Addison's Disease Self-Help Group has published guidance in conjuction with a...
Fundraiser in aid of Living with CAH & 120Marathonman Charities
Join Graham Wilson and his fantastic team in as many or as few steps as you would like to. He will walk an average of 60,000 steps per marathon giving a total of 7.2 million steps throughout the 120 days. 120 marathons taking in the 48 English counties, Scotland,...
Webinar: Accessing Mental Health Services – 10th May, 7pm UK time.
WEBINAR: Accessing Mental Health Services Interconnected UK (Icon UK) is pleased to invite you to a webinar to learn more about mental health services in the public, private and third sectors in the UK. Some people with variations in sex characteristics have had good...
Call out for young women with CAH!
DSD Families are recruiting young adults aged 16-25 with experience of variations of sex development to help shape and develop some of their peer psychosocial support ideas. Since CAH falls under the variations of sex development umbrella, they would like to speak to...