NCEPOD study seeks opinions on transition from child to adult heathcare
NCEPOD (National Confidential Enquiry into Patient Outcome and Death) are developing a study aimed at service users to look at the transition of care from child to adult healthcare services.
If you’re interested in taking part – read more on NCEPOD’s website.
Recent Blog Posts
What you should know about COVID-19 – updated 18th December
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 18th December 2020 The Society of Endocrinology has issued a statement about COVID-19 vaccines - read...
Society for Endocrinology statement on COVID-19 vaccines
The Society for Endocrinology has released a statement on COVID-19 vaccines for patients with endocrine conditions - which states: "We are not aware of any specific side effects of a COVID-19 vaccine that would be unique to people with endocrine conditions" and that...
Virtual Adult Meeting – Sunday 13th December, 11am UK time
The Support Group will be running a virtual Adult Meeting on Sunday 13th December at 11am (UK time). This is a great chance to meet other adults with CAH and have a friendly chat. If you would like to join us, please contact Kaz (her details are on the 'Meet the Team'...
Article: Recommendations of patients and families of girls with 46XX CAH in the UK regarding the timing of surgery
The article, published 23rd November 2020, concluded that 'expert families and patients in the UK who have had CAH surgery, recommend surgery in the first few years of life vs. adulthood' and that while there is a 'selection bias', this finding 'may support...