Call out for young women with CAH!

Feb 22, 2021

DSD Families are recruiting young adults aged 16-25 with experience of variations of sex development to help shape and develop some of their peer psychosocial support ideas.

Since CAH falls under the variations of sex development umbrella, they would like to speak to any young women with CAH. As a thank you for the 6 hours work required (from home, via a computer) they are offering a £50 voucher to those who can contribute.

For more information or to get involved, see the flier here.

 

Recent Blog Posts

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

Survey: Help Improve Rare Disease Research

Survey: Help Improve Rare Disease Research

Developing quality statements for rare disease via consensus across the rare disease community The Rare Disease Quality Statement Project is gathering insights from patients, caregivers, and researchers to improve rare disease research and support. Your feedback is...

Support Group Meeting: London, June 2025

Support Group Meeting: London, June 2025

SUNDAY 8 June 2025 11:00-16:00 NVCO, London, N1 9RL A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition. If you are a member of the CAH Support Group, you will receive a password in the latest...

Webinar: The Art of Parenting While Sick – 27 March

Webinar: The Art of Parenting While Sick – 27 March

The Addison's Disease Self-Help Group (ADSHG) is hosting a webinar titled "The Art of Parenting While Sick" on March 27, 2025. Led by Hilary Hodge, who personally manages her own adrenal insufficiency, the session aims to equip parents with effective, age-appropriate...

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

All content on this website (livingwithcah.com) is copyright the CAH Support Group unless otherwise stated.

The CAH Support Group cannot be held responsible for the content provided by any external links unless stated.

Cookie Policy | Privacy Policy | Disclaimer | Forum & Social Media Rules | Contact Us