Annual General Meeting – 15th October, 2pm UK time via MS Teams

The CAH Support Group is pleased to announce its 4th Annual General Meeting (AGM).
It will be held virtually, via MS Teams, on 15th October 2022 at 2pm UK time.
If you’d like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet the Team’ page) .
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CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey. When you received these reults might not have been at the best time - pehaps you received genomic test results while you were driving, on...
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Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent's Guide to Rare Disease”. Written by parents, for parents, this new guide offers practical support,...
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The CAH Support Group recently provided input into a new Medicines Australia report about access to innovative medicines in Australia. The report, now published, warns that Australian patients are missing access to some innovative medicines available in comparable...


