Virtual Adult Meeting – Sunday 13th December, 11am UK time
The Support Group will be running a virtual Adult Meeting on Sunday 13th December at 11am (UK time).
This is a great chance to meet other adults with CAH and have a friendly chat.
If you would like to join us, please contact Kaz (her details are on the ‘Meet the Team’ page) .
Recent Blog Posts
2026 Annual General Meeting – Online, 18th October
The CAH Support Group is pleased to announce its 8th Annual General Meeting (AGM). It will be held in online via Microsoft Teams on Sunday 18th October 2026 at 9:30-10:30 UK time. If you are a member of the CAH Support Group, you will have received an email...
Patient Survey: Improving the Delivery of Genetic Results
CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey. When you received these reults might not have been at the best time - pehaps you received genomic test results while you were driving, on...
Webinar: Finding Your Way – A Parent’s Guide to Rare Disease
Join the NHS South East Genomic Medicine Service and Unique on Wednesday 16th September 2026 at 12-1pm on Teams to celebrate the launch of “Finding Your Way: A Parent's Guide to Rare Disease”. Written by parents, for parents, this new guide offers practical support,...