Focus Group: Paediatric Adrenal Insufficiency Education
This project, led by Edge Hill University is working with NHS clinicians to develop national education standards and resources for sick day/emergency management of adrenal insufficiency in children and young people.
The project would like to hear the views of parents of children with adrenal insufficiency aged 0-16 years and from young people themselves with AI (aged 10-16).
Note that the survey is now closed, but to be involved in the next focus group, or would like more information, please contact Lucy Bray on brayl@Edgehill.ac.uk or text 07763667185
Recent Blog Posts
A selection of articles from around the world in 2025
Here’s a selection of three articles from around the world in 2025 about CAH. They cover treatment methods and long term outcomes for people with CAH - making for interesting reading for anyone interested in or affected by CAH. These articles are not a recommendation...
COVID-19 Information & Guidance
As new guidance and information becomes available, we will do our best to link to it below - please check here for updates. If you contract COVID-19, remember to adhere to sick-day rules. Always seek guidance from your GP, endocrinologist or other appropriate medical...
Annual General Meeting – 2nd November, 3pm UK time in Oxford
The CAH Support Group is pleased to announce its 7th Annual General Meeting (AGM). It will be held in person at The Lighthouse, Oxford on Sunday 2nd November 2025 at 3pm UK time. A virtual Teams link is available on request. If you'd like to see the agenda and/or...