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Mar 21, 2025

Developing quality statements for rare disease via consensus across the rare disease community

The Rare Disease Quality Statement Project is gathering insights from patients, caregivers, and researchers to improve rare disease research and support. Your feedback is invaluable in shaping better resources and outcomes.

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Recent Blog Posts

A selection of articles from around the world in 2025

A selection of articles from around the world in 2025

Here’s a selection of three articles from around the world in 2025 about CAH. They cover treatment methods and long term outcomes for people with CAH - making for interesting reading for anyone interested in or affected by CAH. These articles are not a recommendation...

COVID-19 Information & Guidance

COVID-19 Information & Guidance

As new guidance and information becomes available, we will do our best to link to it below - please check here for updates. If you contract COVID-19, remember to adhere to sick-day rules. Always seek guidance from your GP, endocrinologist or other appropriate medical...

Annual General Meeting – 2nd November, 3pm UK time in Oxford

Annual General Meeting – 2nd November, 3pm UK time in Oxford

The CAH Support Group is pleased to announce its 7th Annual General Meeting (AGM). It will be held in person at The Lighthouse, Oxford on Sunday 2nd November 2025 at 3pm UK time. A virtual Teams link is available on request. If you'd like to see the agenda and/or...

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

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