Links to other useful sources of information about CAH.

Please note, the Support Group cannot be held responsible for any of the content that these other sites may hold unless explicitly stated.

Information about CAH

British Society for Paediatric Endocrinology & Diabetes  (BSPED)

BSPED aims to improve the care of children and young people with endocrine disorders and diabetes mellitus by bringing together professionals from a range of disciplines. Visit the ‘Clinical Resources’ section to find Patient Information about CAH.

CARES Foundation Resources (including translations to languages other than English)

Some useful resources from the CARES Foundation in the USA as well as other sources worldwide. Includes links to information about CAH in languages other than English.

CAH CoMIC- A concise, medical information cine

 A 5-minute infographic/sketch style video that explains key aspects of CAH.


Explain was developed as part of a project to improve communication between young people, their parents/carers and healthcare professionals in endocrine clinics. Explain was designed to help young people affected by various endocrine conditions talk with doctors and nurses, while also providing them with accessible information about those conditions.

Gene therapy for CAH – ADVANCE-CAH

Adrenas’ goal is to provide a safe and effective gene therapy treatment for adults and children living with classic CAH through the ADvance-CAH gene therapy program. 

HealthSketch video – What is CAH?

A 5 minute video which explains key things about CAH using a sketch format – this video is also featured on our homepage.

Medikidz by Jumo Health – Understanding CAH

A 10-minute cartoon-syle video that explains the key points of CAH – very informative for all!

The Society for Endocrinology

The Society for Endocrinology is the UK home of endocrinology. They bring together the global endocrine community to share ideas and advance the discipline of endocrinology.

You and Your Hormones

A web-based project by the Society for Endocrinology that aims to give patients and the general public access to reliable online information on endocrine science.

Living with CAH

As a Support Group we’ve had many suggestions over the years that can help make ‘living with CAH’ a little easier. We’ve listed some suggestions below . Note – these are not endorsements and we are not in any way affiliated with the companies or organisations listed. 

You can also check out our FAQs page for more general information about living with CAH, and if you’ve any suggestions, please let us know!

Medicine Management

Some ideas about storing, transporting and even reminding you to take your medication.

  • Tabtime – Offering ‘medication management solutions’ such as alarm watches and pill boxes to help with managing your regular medication.
Medical ID Jewellery

Medical ID jewellery helps to communicate medical information simply and quickly in an emergency to first responders, paramedics and doctors. We’ve listed some suppliers below.

Employment & Flexible working

Work has plenty of challenges at the best of times, and having a flexible employer can help to make things a little easier.

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

All content on this website ( is copyright the CAH Support Group unless otherwise stated.

The CAH Support Group cannot be held responsible for the content provided by any external links unless stated.

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