Article: Recommendations of patients and families of girls with 46XX CAH in the UK regarding the timing of surgery
The article, published 23rd November 2020, concluded that ‘expert families and patients in the UK who have had CAH surgery, recommend surgery in the first few years of life vs. adulthood’ and that while there is a ‘selection bias’, this finding ‘may support multi-disciplinary teams in continuing to discuss surgery as an option in childhood’.
To read the full article, click here.
Recent Blog Posts
Liquid Hydrocortisone Discontinued in the UK
Liquid hydrocortisone injections have been discontinued in the UK, affecting emergency treatment for people with adrenal insufficiency. This follows the supply shortage reported in February 2025 -...
Medicine security – a national UK priority.
Concerns about medicines shortages in the UK have been highlighted in recent analysis from the House of Lords Public Services Committee and the Royal Pharmaceutical Society. The House of Lords Public Services Committee warns that medicines supply should be treated as...
2026 CAH Support Group Conference, 28th June, Sheffield
SUNDAY 28th JUNE 2026 9.30 -16:00 The Old Rectory, Handsworth, Sheffield, S13 9BZ theoldrectoryhandsworth.co.uk Those living with CAH and their families and friends are invited to the biennial conference of CAH Support Group. Visit our online booking page here to find...