Article: Recommendations of patients and families of girls with 46XX CAH in the UK regarding the timing of surgery
The article, published 23rd November 2020, concluded that ‘expert families and patients in the UK who have had CAH surgery, recommend surgery in the first few years of life vs. adulthood’ and that while there is a ‘selection bias’, this finding ‘may support multi-disciplinary teams in continuing to discuss surgery as an option in childhood’.
To read the full article, click here.
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
Survey: Help Improve Rare Disease Research
Developing quality statements for rare disease via consensus across the rare disease community The Rare Disease Quality Statement Project is gathering insights from patients, caregivers, and researchers to improve rare disease research and support. Your feedback is...
Support Group Meeting: London, June 2025
SUNDAY 8 June 2025 11:00-16:00 NVCO, London, N1 9RL A friendly and welcoming space for those with CAH, their families and friends to meet and learn more about the condition. If you are a member of the CAH Support Group, you will receive a password in the latest...
Webinar: The Art of Parenting While Sick – 27 March
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