Virtual Family Meeting – 22nd November, 10am UK time
The Support Group will be running a virtual Family Meeting on Sunday 22nd November at 10am (UK time).
We will have Dr Nils Krone from Sheffield online with us for the first hour, to answer any questions you may have, and we will have time afterwards to chat and discuss anything you would like to.
If you would like to join us, please contact Sallyann (her details are on the ‘Meet the Team’ page) .
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
New Drug Research Study (LuAG13909): Participants wanted
The study, run by Guy's and St Thomas' NHS Foundation Trust, London UK, will evaluate the effects of different doses of the study drug, Lu AG13909 in adult participants with congenital adrenal hyperplasia (CAH). Individuals with CAH have abnormally low levels of...
Research – Emotion Perception in Youth with CAH
"Altered Emotion Perception Linked to Structural Brain Differences in Youth With Congenital Adrenal Hyperplasia" From Volume 25, Fall 2023 Cares Foundataion Newsletter "Conclusion: Findings suggest that youth with CAH perceive emotive stimuli as more unpleasant....
Annual General Meeting – 26th November, 10:30am UK time via MS Teams
The CAH Support Group is pleased to announce its 5th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 26th November 2023 at 10:30 am UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet...