Online Survey – Self-management for patients with Adrenal Insufficiency 

Feb 17, 2023

Wording below credit to The Pituitary Foundation:

This research study is looking for adults in the UK with adrenal insufficiency. Researchers are looking to understand the factors that affect how people with adrenal insufficiency manage their condition and treatments. This will guide the development of an online self-management programme, and give an insight on current patient education and care servives in the UK.

The survey will take around 20-30 minutes to complete, and as a thank you the research team are donating £3 for every survey completed to The Pituitary Foundation and Addison’s Disease Self Help Group.

To complete the survey click here: Adrenal Insufficiency Self-management: Pilot Study (qualtrics.com)

If you have further queries or you would like a hard copy of the survey (including a pre-paid envelope to return) please contact: Dr Sofia Llahana – sofia.llahana@city.ac.uk.

Recent Blog Posts

What you should know about COVID-19 – updated 10th August 2021

What you should know about COVID-19 – updated 10th August 2021

Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...

European Hormone Day – 24th April 2024 – Because Hormones Matter

European Hormone Day – 24th April 2024 – Because Hormones Matter

European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter. Many people have an idea of what hormones...

Genomics England – The Generation Study – CAH included

Genomics England – The Generation Study – CAH included

The Generation Study is being carried out by Genomics England in partnership with the NHS. It is exploring the possible use of genome sequencing in newborn babies to identify a wide range of rare genetic conditions alongside the routine newborn blood spot screening....

The CAH Support Group is affiliated with Society for Endocrinology, an organisation that supports clinicians, scientists and nurses who work with hormones throughout their careers. They engage policy-makers, journalists, patients and the public with hormone science to encourage informed health decisions, and to demonstrate the value of endocrinology to the wider world and also maintains a public information website, You and Your Hormones.

All content on this website (livingwithcah.com) is copyright the CAH Support Group unless otherwise stated.

The CAH Support Group cannot be held responsible for the content provided by any external links unless stated.

Cookie Policy | Privacy Policy | Disclaimer | Forum & Social Media Rules | Contact Us