Adrenal Causes Together – International Collaboration for Endocrine Conditions
The CAH support group has been working with a group called ‘Adrenal Causes Together’ during the Covid-19 pandemic set-up by the Addison’s Disease Self-Help Group.
Patient support groups representing a range of different conditions from UK, Europe, Australia and the US together with Endocrine nurse specialists and Endocrinologists have been sharing information and meeting on-line to share information, explore new strategies and offer advice and support.
One of the actions from the group was to write an open letter to Endocrinologists and medical authorities in Brazil asking for specific support for those with adrenal insufficiency in Brazil at this difficult time and offer solidarity with those who are struggling to get the help and medical supplies they need. You can read the letter here.
We hope to continue contributing, supporting and learning with international groups in the future.
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