Adrenal Causes Together – International Collaboration for Endocrine Conditions
The CAH support group has been working with a group called ‘Adrenal Causes Together’ during the Covid-19 pandemic set-up by the Addison’s Disease Self-Help Group.
Patient support groups representing a range of different conditions from UK, Europe, Australia and the US together with Endocrine nurse specialists and Endocrinologists have been sharing information and meeting on-line to share information, explore new strategies and offer advice and support.
One of the actions from the group was to write an open letter to Endocrinologists and medical authorities in Brazil asking for specific support for those with adrenal insufficiency in Brazil at this difficult time and offer solidarity with those who are struggling to get the help and medical supplies they need. You can read the letter here.
We hope to continue contributing, supporting and learning with international groups in the future.
Recent Blog Posts
What you should know about COVID-19 – updated 10th August 2021
Guidance from other organizations is continually being issued and we'll do our best to link to them below - please keep checking back here for more updates. UPDATE 10th August 2021 Article: “ChAdOx1 SARS‐CoV‐2 vaccination: A putative precipitant of adrenal crises”...
New Drug Research Study (LuAG13909): Participants wanted
The study, run by Guy's and St Thomas' NHS Foundation Trust, London UK, will evaluate the effects of different doses of the study drug, Lu AG13909 in adult participants with congenital adrenal hyperplasia (CAH). Individuals with CAH have abnormally low levels of...
Research – Emotion Perception in Youth with CAH
"Altered Emotion Perception Linked to Structural Brain Differences in Youth With Congenital Adrenal Hyperplasia" From Volume 25, Fall 2023 Cares Foundataion Newsletter "Conclusion: Findings suggest that youth with CAH perceive emotive stimuli as more unpleasant....
Annual General Meeting – 26th November, 10:30am UK time via MS Teams
The CAH Support Group is pleased to announce its 5th Annual General Meeting (AGM). It will be held virtually, via MS Teams, on 26th November 2023 at 10:30 am UK time. If you'd like to see the agenda and/or attend, please contact Sallyann (her details are on the ‘Meet...