Adrenal Causes Together – International Collaboration for Endocrine Conditions
The CAH support group has been working with a group called ‘Adrenal Causes Together’ during the Covid-19 pandemic set-up by the Addison’s Disease Self-Help Group.
Patient support groups representing a range of different conditions from UK, Europe, Australia and the US together with Endocrine nurse specialists and Endocrinologists have been sharing information and meeting on-line to share information, explore new strategies and offer advice and support.
One of the actions from the group was to write an open letter to Endocrinologists and medical authorities in Brazil asking for specific support for those with adrenal insufficiency in Brazil at this difficult time and offer solidarity with those who are struggling to get the help and medical supplies they need. You can read the letter here.
We hope to continue contributing, supporting and learning with international groups in the future.
Recent Blog Posts
Article: Adult Quality of Life with CAH
A new study published in Endocrine Connections explores the lived experiences of adults with congenital adrenal hyperplasia (CAH) and the wide-ranging impact the condition can have on quality of life. Through in-depth interviews with adults living with CAH as well as...
Liquid Hydrocortisone Discontinued in the UK
Liquid hydrocortisone injections have been discontinued in the UK, affecting emergency treatment for people with adrenal insufficiency. This follows the supply shortage reported in February 2025 -...
Medicine security – a national UK priority.
Concerns about medicines shortages in the UK have been highlighted in recent analysis from the House of Lords Public Services Committee and the Royal Pharmaceutical Society. The House of Lords Public Services Committee warns that medicines supply should be treated as...