The Support Group
The CAH Support Group was formed approximately 16 years ago. It is a sub group of CLIMB (Children Living with Inherited Metabolic Diseases), which is a registered charity (No. 1089588). Both CLIMB and the CAH Support Group exist to: -
a) Give support to families and sufferers
b) To increase awareness of the condition to the public and to the medical profession
c) To raise funds to support research
The support group committee is made up entirely of volunteers who meet at least four times a year to discuss the Groups progress.
We hold conferences at regular intervals and a newsletter is sent out three times a year. Our current membership stands at approximately 400 families and 150 professionals and our key to success is getting information to where it is needed as soon as possible after the need is recognised (i.e. at diagnosis when this time is crucial).
If you are a parent, carer or sufferer, please consider joining as a member. With your support we can make sure that those affected by CAH get ours. To learn more about membership, please click HERE.
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